Events

European Partnership on Rare Diseases (ERDERA) - Launch Event
OCT
Mon
28
14:00 - 16:30

This was 1 year ago

Location

Online

Programmes
Health

The European Partnership on Rare Diseases (ERDERA) organises an open session to present the new partnership to a broad audience of interested stakeholders.

The list of speakers includes, among others: 

  • Irene Norstedt, Director, People Directorate DG RTD, European Commission 
  • Arjon Van Hengel, Deputy Head of Unit, Health Innovations & Ecosystems, European Commission 
  • Virginie Bros-Facer, CEO, EURORDIS 
  • Prof. Guillaume Canaud, Hôpital Necker-Enfants malades AP-HP, France 
  • James Levine, President, Fondation Ipsen 
  • Daria Julkowska, ERDERA Scientific Coordinator, INSERM 

More information about the event and the link to register on the ERDERA website.

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Testimonial

image of YoPA – Youth-centered participatory action for a healthy lifestyle

YoPA – Youth-centered participatory action for a healthy lifestyle

The YoPA project, ‘a youth-centred preventive action approach towards co-created implementation of socially and physically activating environmental interventions’ obtained funding from Horizon Europe’s Health Cluster. The project addresses the multifaceted challenges of physical inactivity and health inequalities through a unique participatory approach. The project places teenagers between 12 and 18 years old in vulnerable situations at the forefront of the intervention process. The Institute of Tropical Medicine is a partner in the project and will conduct a Realist Evaluation to understand how youth co-creation contributes to improved adolescent health and well-being in four cities in Denmark, Netherlands, Nigeria and South Africa.  By integrating its results and sharing its approach in an open access Toolbox, ITM aims to contribute to fostering sustainable, youth-led solutions for healthier urban environments.