Events

European Partnership on Rare Diseases (ERDERA) - Launch Event
OCT
Mon
28
14:00 - 16:30

This was 1 year ago

Location

Online

Programmes
Health

The European Partnership on Rare Diseases (ERDERA) organises an open session to present the new partnership to a broad audience of interested stakeholders.

The list of speakers includes, among others: 

  • Irene Norstedt, Director, People Directorate DG RTD, European Commission 
  • Arjon Van Hengel, Deputy Head of Unit, Health Innovations & Ecosystems, European Commission 
  • Virginie Bros-Facer, CEO, EURORDIS 
  • Prof. Guillaume Canaud, Hôpital Necker-Enfants malades AP-HP, France 
  • James Levine, President, Fondation Ipsen 
  • Daria Julkowska, ERDERA Scientific Coordinator, INSERM 

More information about the event and the link to register on the ERDERA website.

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Testimonial

image of iCARE4CVD: Thomas More participates in research on improving patient care

iCARE4CVD: Thomas More participates in research on improving patient care

Funded under Horizon Europe’s Innovative Health Initiative (HORIZON-JU-IHI-2022-02-01) and running from 2023 to 2028, the iCARE4CVD project aims to improve patient care across the board, starting from those at risk of developing cardiovascular disease to those with advanced heart failure. Thomas More University of Applied Sciences plays an important role in the project focusing data analysis and AI modeling as well as on the implementation of Patient-Reported Outcome Measures and Patient-Reported Experience Measures. Find out more in the full article.