Events

European Partnership on Rare Diseases (ERDERA) - Launch Event
OCT
Mon
28
14:00 - 16:30

This was 8 months ago

Location

Online

Programmes
Health

The European Partnership on Rare Diseases (ERDERA) organises an open session to present the new partnership to a broad audience of interested stakeholders.

The list of speakers includes, among others: 

  • Irene Norstedt, Director, People Directorate DG RTD, European Commission 
  • Arjon Van Hengel, Deputy Head of Unit, Health Innovations & Ecosystems, European Commission 
  • Virginie Bros-Facer, CEO, EURORDIS 
  • Prof. Guillaume Canaud, Hôpital Necker-Enfants malades AP-HP, France 
  • James Levine, President, Fondation Ipsen 
  • Daria Julkowska, ERDERA Scientific Coordinator, INSERM 

More information about the event and the link to register on the ERDERA website.

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Testimonial

image of Methylomic – Hope & Improved outcomes for Crohn’s disease patients across Europe

Methylomic – Hope & Improved outcomes for Crohn’s disease patients across Europe

The METHYLOMIC project, ‘targeting hope for personalised medicine in immune-mediated inflammatory diseases’ obtained funding from Horizon Europe’s Health Cluster. The project aims to personalise treatment allocation and enhance the effectiveness of medications for chronic immune-mediated diseases such as Crohn’s disease, rheumatoid arthritis, and psoriasis. BIRD, the Belgian inflammatory bowel disease research and development group, is a partner in the project and is involved in the OmiCrohn trial, a prospective randomised clinical trial for individualised therapy in Crohn’s disease patients. With BIRD’s active role in this trial, the project is set to deliver predictive, biomarker-based therapies that bring renewed hope for Crohn’s disease patients across Europe.

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