Rare diseases
Partnership website: https://www.ejprarediseases.org/erdera/
The partnership will coordinate national, local and European research and innovation programmes, combining research funding and implementation of research supportive activities such as training, data access infrastructures, data standards etc.
The main goal is to improve the life of patients with rare diseases by developing diagnostics and treatments for rare diseases through multidisciplinary research and innovation programmes with all relevant stakeholders. This will increase impact and uptake of research results as well as increase the visibility of EU leadership in rare diseases research.
Timeline & key documents
- More information on the partnership can be found in the draft outline of partnership proposal (February 2022).
- A first version of the Strategic Research & Innovation Agenda that will underpin the Partnership was published in Spring 2023 in the context of a public consultation. The SRIA is yet to be finalised.
- The Partnership is foreseen to start its first activities in 2024.
Contact
Commission services: RTD-RD-PARTNERSHIP@ec.europa.eu
Partners (main contact): Drafting Group of Member State representatives
What are partnerships?
Partnerships group the EC and private and/or public partners, to coordinate and streamline the research & innovation initiatives and funding in some selected key domains.
How to use partnerships?
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orientation
Partnerships publish strategic documents, e.g. outlining the main research and innovation challenges or key focus points. -
networking
Partnerships often organise events, such as info days, brokerage events, etc. Meet potential partners and learn about the nuances that are not visible in the official documents. -
ecosystem analysis
Partnerships typically have an advisory board, and publish impact studies of previous actions. These are good sources of information to uncover the main R&D&I players in the domain. -
steering the agenda
Partnerships collaborate with the EC on outlining the strategy and the future funding opportunities in their domain, based on input from industry, academia, and other stakeholders.
Testimonial
Circusol - Circular Business Models for the Solar Power
Circusol is an Innovation Action project funded under a cross-cutting work programme part of Horizon 2020. Circusol aims at unleashing the full potential of circular business models, in particular Product-Service Systems, in simultaneously delivering real environmental, economic and user benefits. By that, Circusol aims to establish solar power as a spearhead sector in demonstrating a path driven by service-based businesses towards a circular economy in Europe.
A strong Flemish partnership in new Horizon 2020 project on circular economy business demonstrators, including VITO (Coordinator), IMEC, Ecopower cvba, Futech bvba, PV Cycle aisbl and Daidalos Peutz bvba.
